Up & down PB. Unfortunately mentally this has taken a huge toll on me, I have been suffering with severe panic attacks, barely leaving my house atm and haven't been outside without my mum or my partner since January. I have honestly never felt so low in all my life - only sleeping for 4/5 hours at a time.
I saw a specialist last week, he was lovely and really took his time going through my notes, he was quite shocked at how much back and forwards and passing between departments has gone on but very little actually done & he has assured me that one way or another he is going to find out what it is and wont pass my case onto someone else. It was a huge relief to have someone feel like they are on my side as until I have a diagnosis I am going to continue to fear the worst. I have a few tests coming up over the next few weeks and if they show nothing then a top to toe MRI scan will be carried out. Fingers crossed I will get some answers and can get back to normal. Physically and mentally I feel like a shadow of my former self. Thanks for thinking of me x
First lot of tests done on Thursday and although no definite answers as yet a few things showed up, some she could tell me there and then and other bits need to wait for biopsy results. My digestive track and stomach are to quote the endoscopy lady (I have no idea what your job title would be?!) "A mess" at last I am getting some where now.... Have a scan a week on Tuesday then seeing the consultant on the 28th and will hopefully have a better idea then of what's going on and what can be done about it.
Feeling a little better in myself PB. Have been forcing myself out the house every day alone even if its just 10 mins with my dogs and I have confided in a good friend who persuaded me into going for a half hour hack one night last week (not on Ori I might add) but that floored me I was knackered after that! X
Well one small step forward, several back! Spent most of Tuesday night being sick into Weds morning then pretty much all day in my bed yesterday and feeling rubbish today to.
Saw my consultant on Tuesday and nothing significant came back from recent tests, so I was hoping he would be arranging for me to have a CT scan - as they have said every time I've been hospitalised, as my GP has requested on several occasions, as advised by the consultant I paid to see private in January but wait for it.... They aren't "keen" to do it because of my age! He sent me off with a prescription for more antibiotics - the 9th round now -although why they are giving me all these pills when they don't know what they are dealing with is beyond me & he will arrange to see me in 8 weeks if I'm still ill they will reconsider. In 8 weeks time it will be 10 months, this month alone I have lost 7th and now weight 8st 5 the lightest I have been in about 8 years, I really don't know how much worse they want me to get. If i get another flare up that requires hospital and fluids I may chain myself to the bed and refuse to leave without an answer . I was so mad I left really without asking anything.
I saw my own GP today and he said they won't be keen to do the scan due to high levels of radiation as I am of child bearing age, I asked him if in this state it would be wise for me to have a child & his response was "absolutely not". Seems a bit contradictory to me!